Run for Rare!

Raise funds while raising your heart rate!

Run for Rare

Raise your heartrate and funds for rare disorders by participating in community sporting events!

How to get started

  1. Register in one of the upcoming sporting events below.
  2. Create your own Grassrootz fundraising page with your motivations for running for rare and your fundraising goal.
  3. Share your page with your networks and encourage them to support your efforts by donating through your page.
  4. Let RDNZ know so that we can give you shout outs on social media!

Good luck! You've got this!

Upcoming Events

18 July 2026 - WUU2K - Wellington Urban Ultra 2026

Need some inspiration?

Running with a rare disorder

Read Steve's story about running with a rare disorder

Steve's story

Running for her niece

Find out how Stephanie's niece inspired her to raise funds for Rare Disorders NZ

Stephanie's story

Shop #GlowUp sports shirts

Purchase your Glow Up and Show Up sports t-shirts and caps here

Share your efforts on social media!

#DoRightbyRare

and tag @RareDisordersNZ on Facebook or @RareDisorders_NZ on Instagram.

 

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Our Collective

Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 150 disorder-specific support groups. Our work is informed by the issues important to our collective, and we work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.

Learn more