Lake Taupo Cycle Challenge 2025

29 Nov 2025 - 29 Nov 2025


Support The Rare Disorders New Zealand Trust in the Lake Taupo Cycle Challenge 2025 *Register to fundraise for Rare Disorders NZ here: https://laketaupocyclechallenge25.grassrootz.com/rdnz The Lake…

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The WAI Running Festival Wellington 2025

22 Nov 2025 - 22 Nov 2025


Support The Rare Disorders New Zealand Trust in The WAI Running Festival 2025 22nd November The WAI2K Run Fest for 2025 provides the perfect playground for trail runners to come and explore Greater …

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2025 Barfoot & Thompson Auckland Marathon presented by ASICS

2 Nov 2025 - 2 Nov 2025


Support The Rare Disorders New Zealand Trust in the 2025 Barfoot & Thompson Auckland Marathon presented by ASICS Join in New Zealand’s biggest, most iconic, colourful, cultural running celebration a…

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Wellington Urban Ultra 2025

12 Jul 2025 - 12 Jul 2025


Support The Rare Disorders New Zealand Trust in the WUU2K - Wellington Urban Ultra 2025 The WUU2K is Wellington's premier Trail Ultra marathon. This iconic event takes runners on a journey around th…

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Rare Disorders Research Network Event

27 Mar 2025 - 27 Mar 2025


Rare Disorders New Zealand and Victoria University of Wellington are hosting a Rare Disorders Research Network event for members of the group to come together and connect, share their work and stay u…

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Nelson get-together

23 Mar 2025 - 23 Mar 2025


Meet other families in the rare disorder community in Nelson at this get-together at Founder's Cafe. Sunday 23rd March, 2pm - 3pm.

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New Plymouth get-together

22 Mar 2025 - 22 Mar 2025


Come along to Brooklands Zoo and meet others from the rare disorder community. Where: Brooklands Zoo, 30 Brooklands Park Drive, Brooklands, New Plymouth When: 22 March 10am - 12pm

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Glow Up and Show Up South Canterbury

16 Mar 2025 - 16 Mar 2025


Join us for a catch up at the Shearers Quarters to celebrate Rare Disorders Month and meet others in the rare disorders community. Children are welcome.

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Wellington get-together

8 Mar 2025 - 8 Mar 2025


Get together with others in the rare disorder community at this BYO picnic at Khandallah Park Children's Playground Saturday 8th March, 2-4pm

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Auckland get-together

8 Mar 2025 - 8 Mar 2025


Get together with others in the rare disorder community at a BYO picnic at Cornwall Park (Band Rotunda) Saturday 8th March, 12-2pm

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Cambridge get-together

8 Mar 2025 - 8 Mar 2025


Come along to our get together at St Kilda's playground in Cambridge and meet other rare disorder families in the neighbourhood! 8th of March at 10.30am. Kaniera Terrace

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Mid Canterbury Children's day

2 Mar 2025 - 2 Mar 2025


Join us in Tinwald and get together with other families from the rare disorder community. Sunday 2nd March 10.30am to 2.30pm Plains Museum Tinwald Domain Maronan Rd, Tinwald

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Upcoming Events

Our Collective

Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 150 disorder-specific support groups.

Our work is informed by the issues important to our collective. We work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.

Learn more