HHT New Zealand
Hereditary Hemorrhagic Telangiectasia; HHT; SMAD4 gene; Juvenile polyps syndrome; Olser-Webber-Rendu disease
Facebook: www.facebook.com/groups/542078272843891
Hereditary Hemorrhagic Telangiectasia; HHT; SMAD4 gene; Juvenile polyps syndrome; Olser-Webber-Rendu disease
Facebook: www.facebook.com/groups/542078272843891
16 Aug 2024
25 Jul 2024
22 Jul 2024
21 Jul 2024
19 Jul 2024
25 Jun 2024
18 Jun 2024
18 Jun 2024
Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 160 disorder-specific support groups.
Our work is informed by the issues important to our collective. We work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.
