HHT New Zealand
Hereditary Hemorrhagic Telangiectasia; HHT; SMAD4 gene; Juvenile polyps syndrome; Olser-Webber-Rendu disease
Facebook: www.facebook.com/groups/542078272843891
Hereditary Hemorrhagic Telangiectasia; HHT; SMAD4 gene; Juvenile polyps syndrome; Olser-Webber-Rendu disease
Facebook: www.facebook.com/groups/542078272843891
19 Nov 2024
15 Nov 2024
24 Oct 2024
22 Oct 2024
7 Oct 2024
16 Aug 2024
25 Jul 2024
22 Jul 2024
Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 150 disorder-specific support groups.
Our work is informed by the issues important to our collective. We work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.
