Ava's story
4 Apr 2022
My daughter was diagnosed with 1p36 deletion syndrome just after she turned 2.
Deep down I always knew she was a little different, she didn’t make a sound when she was born and she cried for the first time at 3 months old.
She wouldn’t really interact or look at us directly and at 4 months we got a referral to see an optometrist.
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She surprises us every day. She has an infectious laugh that can light up a room and has a curious soul.
We have her enrolled with Conductive education and this has been so beneficial for her to develop her gross motor skills. She goes swimming once a week which she loves and has just started RDA.
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