Rare Disorders NZ supports the Ministry for Primary Industries proposal to add folic acid to flour to reduce the number of babies born with spina bifida and other neural tube defects.

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“This means that there are about twelve New Zealanders per year who are unnecessarily destined for a lifetime of disability (with annual childhood rehabilitation costs of about $400,000 per year, and a significant burden of care which is borne by their families), and a further 12 who are denied the right to life altogether.”

Read NZHR's media release

Our Collective

Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 150 disorder-specific support groups.

Our work is informed by the issues important to our collective. We work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.

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