HEALTH SELECT COMMITTEE SUBMISSION: Petition of Sue Haldane for Rare Disorders NZ: Develop a National Rare Disorder Framework
16 Aug 2021
HSC-submission-from-Rare-Disorders-NZ_-Sue-Haldane-Petition-v2.pdf
HSC-submission-from-Rare-Disorders-NZ_-Sue-Haldane-Petition-v2.pdf
Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 150 disorder-specific support groups.
Our work is informed by the issues important to our collective. We work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.
