As part of Rare Disease Day 2020, RDNZ has teamed up with Fortune Favours craft beer brewers to create a Rare Beer. This “collab brew” will be created by members of the rare disorder community, alongside award-winning brewer Dale, using very special ingredients. Our Rare Beer will be distributed to bars throughout Wellington, and it’s a great opportunity to raise awareness as well as funds for our organisation.

We’re looking for beer fans to take part in the brewing process. It will take place on Wednesday 15 January at Fortune Favours brewery in central Wellington. The brewing process goes from 9am to midday, though brew assistants wouldn’t need to be present for the whole period. Once the beer is created, it will develop over four weeks and be ready mid-February. We’re also looking at getting some media along to ensure we can spread the word that Rare is Everywhere. 

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Our Collective

Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 150 disorder-specific support groups.

Our work is informed by the issues important to our collective. We work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.

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