Rare Disorders NZ: December update
20 Dec 2019
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Our CE Lisa Foster and Nicola Swan from SWAN NZ attended the launch of National's Health Discussion document last week.
National commits to establishing a ring-fenced $20 million rare disorders fund over four years as well as reviewing criteria and formula of assessment to ensure people with rare disorders aren't overlooked (page 20).
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"Connection and cooperation are the themes from my experience at APARDO 2019. There was a genuine and whole-hearted approach shared by all participants. Threads of shared learnings, challenges and potential solutions combined to deliver a common fabric which bound us all together despite our geographical dispersion and diversities."
Read Lisa's full report on our website
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