Rare Disorders NZ: February update

"If there had been a framework for his rare condition, the experience would have been very different."

None

Media release: Be Rare Aware and support an inclusive health system for all New Zealanders

The New Zealand Government’s support of vulnerable people throughout the COVID-19 pandemic should be applauded - but more should be done to help the 6% of the population living with a rare disorder.

None

-----------------------------

None

-----------------------------

None

None

None

None

None

Last month RDNZ’s CE Lisa Foster, alongside three support group leads, gave an oral submission to the Education and Workforce Committee on the impact of increasing sick leave for families living with a rare disorder.

RDNZ supported our collective to submit a submission on the Holidays (Increasing Sick Leave) Amendment Bill through the creation of a template and explanation about the process. A total of 12 support groups/individuals made a submission to extend the annual entitlement of sick leave from 5 to 10 days’ paid sick leave, and shared the impact this increase in leave would have on them.

None