Rare Disorders NZ: February update

His parting words to me were that “I would be in a wheelchair within five years so just get used to the idea.”

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Rare Disorders NZ, and the support groups we represent, are calling for acknowledgement of the common challenges faced by people living with a rare health condition, along with a commitment to address these challenges through the development of a New Zealand National Rare Disorder Framework.

This event is part of Rare Disease Day 2020 and is also an opportunity to celebrate Rare Disorder NZ’s 20th birthday – please join us to commemorate two decades of supporting the rare disorder community.

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