Rare Disorders NZ launches new podcast

Rare Disorders NZ is proud to introduce our new podcast series, Rare Aware, hosted by Alanna Peck.

Through this series Alanna will be exploring what it means to live with a rare disorder in Aotearoa New Zealand and how individuals and families navigate the journey. She will also be speaking with experts about what work is being done to make New Zealand a better place for the rare disorder community.

We hope this podcast will help build greater understanding, connection, and support for the rare disorder community.

In the first episode, Alanna speaks with outgoing Chair of Rare Disorders NZ  James McGoram, who is having to uproot his family and move to Australia to access the life-saving treatment he requires to manage his rare disorder, Fabry disease.

You can access the podcast here or from any major podcast platform.