Rare Disorders NZ: October update

"What I wish for, to make life easier, would be for better funding and understanding of the real cost living with a rare disease has."

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Rare Disorders NZ has identified seven strategic priorities and is leading the call for the development of a New Zealand National Rare Disorder Framework to ensure equitable healthcare for all people living with a rare disorder. We are consulting with the 140 support groups we're connected with, along with the wider rare disease community, to ensure these priorities include all the issues. 

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RDNZ congratulates Rare Diseases International for ensuring that the UN Member States adopted a political declaration on universal health coverage (UHC) that includes mention of rare diseases. 

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