Rare resolution adopted by World Health Assembly

It was a historic moment for the global rare disorder community on 24th May when the 78th World Health Assembly adopted the first-ever resolution on rare diseases.

The resolution declares rare diseases a global health priority and urges member states to take action within their own countries to improve their health systems for people living with rare diseases.

The Director General of the World Health Organization is now expected to develop a 10-year Global Action Plan on Rare Diseases, which will support member states with clear targets and accountability measures.

For New Zealand, this global recognition will help further our push for the implementation of the Rare Disorders Strategy.

Rare Disorders NZ CE Chris Higgins was with the team from Rare Disease International during this historic week in Geneva, Switzerland.