RDNZ calls for expansion of rule 8.1b in consultation submission

Rare Disorders NZ will make a submission to Pharmac’s review of rule 8.1b of the Pharmaceutical Schedule.

Pharmac is currently reviewing rule 8.1b of the Pharmaceutical Schedule due to concerns around the increasing costs of new medicines, and that other groups, such as children with rare disorders, do not have the same funding access to medicines.

Rare Disorders NZ supports the expansion of rule 8.1b to include all children with serious illnesses, including those with rare disorders and other life-threatening illnesses where there is a medicine available – currently funded or not. Not only life-threatening illnesses but also conditions where early treatment would prevent decline and ill health later in life. Early treatment is essential for long term health and development of children and their future well-being.

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