RDNZ submission on draft statement on disclosure of harm following an adverse event

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Rare Disorders NZ made a submission calling for misdiagnosis and delayed diagnosis to be recognised as causing harm. 

Rare Disorders NZ would like to ensure that delayed diagnosis and misdiagnosis are recognised as adverse events that can cause harm and require open disclosure. We believe this is vital to maintain trust in, and in some cases restore, the doctor-patient relationship. Open disclosure would also facilitate an environment where clinical teams can discuss misdiagnosis and delayed diagnosis and any adverse effect this had and disseminate learnings and improve processes to prevent similar situations occurring in the future. 

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