Rare Disorders NZ welcomes the Government’s commitment to improving access to
medicines and supports key components of the Medicines Amendment Bill, including
the introduction of a streamlined verification pathway and updated prescribing settings
for unapproved medicines in appropriate clinical contexts.

However, we share the concerns raised by Medicines New Zealand about the
effectiveness of the proposed “consent by verification” or “rule of two” mechanism in
achieving the Bill’s goal of improving access, particularly for people with rare disorders.

Read the full submission here.

Our Collective

Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 150 disorder-specific support groups.

Our work is informed by the issues important to our collective. We work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.

Learn more