Those living with a rare disorder in New Zealand experience inequitable, ineffective, and/or no access to the diagnostic and treatment services they require for them to have healthy futures. This is due to a combination of lack of clinician awareness and systemic barriers to appropriate services which are embedded within the current health system. We have the opportunity to improve this picture.

Read RDNZ's full submission to the Pae Ora Legislation Committee here:

RDNZ-POLC-submission-final-071221-1.pdf

Our Collective

Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 150 disorder-specific support groups.

Our work is informed by the issues important to our collective. We work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.

Learn more