The Neurological Alliance, with Rare Disorders NZ's support, sent two letters on Monday 3 October on the Alliance's position in relation to the Health Reforms, the new health system and engagement.

The first letter was to Minister Little, expressing frustration about the lack of engagement with Health NZ, and seeking a meeting with him to start the kōrero to ensure the future outcomes in the new health system deliver for those impacted by a neurological condition, including their supporting whānau.

Letter to Minister Little

The second was to the new CEOs of Te Aka Whai Ora (Riana Manuel) and Te Whatu Ora (Margie Apa) seeking engagement and collaboration on the work ahead in the new health system.

Letter to Health CEOs

The Neurological Alliance was established in 1999 to provide a forum for organisations representing a neurological disease to work together and make representations on matters of common interest. All members have a common desire to promote community awareness of neurological diseases and to see that the needs of people with neurological conditions are met.

More information and the Terms of Reference can be found at the Alliance’s website:

http://www.neurologicalalliance.org.nz/ 

Our Collective

Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 150 disorder-specific support groups.

Our work is informed by the issues important to our collective. We work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.

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