Roger's story

I have a rare disorder called Radioulna Synostosis. None of my family have this disorder and I have had it since birth.

Radioulna Synostosis is a rare condition where there is an abnormal connection between the radius and ulna bones of the forearm. It was first described in 1793 and since then there have been just over 400 cases reported. Around 60% of people with Radioulna Synostosis have both arms affected.

Both my arms are affected and I visited the hospital every year while I was growing up to get my arms checked and x-rayed.

When I was growing up, I didn’t think of myself as being any different to other children until I went to intermediate. It didn’t make a difference to the things that I did at school and nobody noticed (as they still don’t) that I have to do some things a little awkwardly. At college I dared not tell anybody that I was different as I would have been picked on for it.

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