I am 78 years old and have suffered from Primary Lymphoedema most of my life which is caused by an insufficient lymph system. In contrast, Secondary Lymphoedema is the result of operations or accidents and only affects the area of the blockage or damage.
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Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 150 disorder-specific support groups.
Our work is informed by the issues important to our collective. We work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.
