Submission on Health NZ's Paediatric, Adolescent and Young Adult Model of Care proposal
30 Apr 2025
Aotearoa New Zealand needs to urgently embed paediatric palliative care as a core function of our public health system.
Rare Disorders NZ asks Health New Zealand to adopt Option 3 in full, and to act with urgency to meet the needs of the 3 out of 4 children dying in Aotearoa without specialist palliative care. Every child deserves the right to die without pain, in a place of their choosing, surrounded by whānau and cultural support.
Read Rare Disorders New Zealand's full submission here.
