Aotearoa New Zealand needs to urgently embed paediatric palliative care as a core function of our public health system.
Rare Disorders NZ asks Health New Zealand to adopt Option 3 in full, and to act with urgency to meet the needs of the 3 out of 4 children dying in Aotearoa without specialist palliative care. Every child deserves the right to die without pain, in a place of their choosing, surrounded by whānau and cultural support.

Read Rare Disorders New Zealand's full submission here.

Our Collective

Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 150 disorder-specific support groups.

Our work is informed by the issues important to our collective. We work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.

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