Rare Disorders NZ supports the goals of ensuring a high-quality, responsive, and sustainable health workforce. We see a lot of potential here to build workforce capacity and capability in relation to rare disorders, as well as a more coordinated health system.

However, regulatory reform alone is not enough. It must be paired with sufficient investment in workforce development and retention. There also needs to be consideration of the evidence base for changes and the flow on effects of regulation changes on the wider health system and patient safety.

Read the full submission here.

Our Collective

Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 150 disorder-specific support groups.

Our work is informed by the issues important to our collective. We work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.

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