Rare Disorders NZ has made a submission to Pharmac on the proposal to fund Ocrelizumab for Primary Progressive Multiple Sclerosis.

Rare Disorders NZ has been a long-time advocate for access to medicines for rare disorders, including rare forms of Multiple Sclerosis (MS).

Rare Disorders NZ supports the changes proposed to the Special Authority Criteria to include access for people with PPMS for Ocrelizumab specifically. We request the proposal is approved with no further delay.

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Our Collective

Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 150 disorder-specific support groups.

Our work is informed by the issues important to our collective. We work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.

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