Rare Disorders NZ has made a submission to Pharmac’s review proposal to phase out funding of food thickeners.

Rare Disorders NZ is extremely disappointed with Pharmac’s proposal to phase out funding of food thickeners.

Rare Disorders NZ proposes that Pharmac does not phase out food thickeners but widen access to include other causes of dysphagia and rare disorders such as Head and Neck cancer.

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Our Collective

Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 160 disorder-specific support groups.

Our work is informed by the issues important to our collective. We work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.

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