Rare Disorders NZ commends New Zealand's public health response to the COVID-19 pandemic that meant mortality from Covid-19 in New Zealand has been kept relatively low compared to other similar nations.

To perform better in any future pandemic or health crises, it is crucial to acknowledge that individuals within the rare disorder community have encountered significant challenges from the onset of the pandemic until today. These challenges are likely to persist in the future, both concerning COVID-19 and beyond.

Rare Disorders NZ's full submission is available here

Our Collective

Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 150 disorder-specific support groups.

Our work is informed by the issues important to our collective. We work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.

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