Rare Disorders NZ has made a submission to the Pae Ora Women’s Health Strategy.

RDNZ recommends an increase to existing supports and provide new ones for women who are carers for those living with a rare disorder– including services accessible for their own health needs, making respite services and funding more flexible across the diverse population of women carers and investing more to improve their wellbeing as a single vital way to safeguard and improve the wellbeing of this large population.

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Our Collective

Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 160 disorder-specific support groups.

Our work is informed by the issues important to our collective. We work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.

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