Webinar: rare disorder support group advocacy

This week advocacy expert Penny Tucker hosted a webinar to give our support groups advocacy tools.

The webinar was well-attended and empowered support groups to understand how to build coalitions and gain support for the collective Fair for Rare NZ campaign.

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Penny Tucker began her career at the New Zealand Ministry of Foreign Affairs and Trade where she specialised in trade and economic issues. Following spells in the Philippines and Brussels, she left the Foreign Ministry and moved with her husband to Washington DC when he was posted to the Embassy there. There she worked for, and became a Director of, a U.S. trade and regulatory consultancy affiliated with one of Washington’s largest Pennsylvania Avenue law firms.  She developed a practice looking at the unintended consequences of international regulation and politically motivated policy changes on businesses – particularly in the health sector. Following her family’s decision to return to New Zealand, she established a company called Advocacy Works which partners with companies and industry associations to predict, analyse, influence and manage government initiatives that impact business and consumers. Penny has been involved in the New Zealand policy environment in sectors including agriculture, medical technology, film, pharmaceuticals, technology and a range of FMCGs. Penny is a published novelist and lives in Auckland with her husband and three daughters.