What is a rare disorder?

In Aotearoa New Zealand a disorder is considered rare when it affects fewer than or equal to 1 in 2,000 people.

An ultra-rare disorder is one that affects fewer than or equal to 1 in 50,000 persons.

Rare disorders include, but are not limited to, genetic disorders, cancers, infectious disorders,
poisonings, immune-related disorders, idiopathic disorders, and undetermined conditions
that are rare.

Source: Aotearoa New Zealand Rare Disorders Strategy

Facts & Figures

Source: National Organization for Rare Disorders (NORD); Global Genes