Clinical Advisory Panel

Rare Disorders NZ's Clinical Advisory Panel has an impressive array of clinical expertise that helps to inform our work. The members of the clinical advisory panel are:

Clinical Genetics: Stephen Robertson (co-chair)

Rheumatology: Rebecca Grainger

Respiratory: Andrew Veale

Haematology: Ruth Spearing

General Practice: John Martley

Audiology: Lisa Seerup

Nursing: Sharron Meadows

Metabolic: Emma Glamuzina

Immunology: Hilary Longhurst

International/Clinical Genetics: Gareth Baynam

Our Collective

Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 150 disorder-specific support groups. Our work is informed by the issues important to our collective, and we work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.

Clinical Advisory Panel

Rare Disorders NZ's Clinical Advisory Panel

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Rare News

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RDNZ Briefing to new Health Minister

Health NZ execs grilled by MPs on Strategy implementation

Connecting rare disorders researchers through new network

Calling for nominations for RDNZ 25th anniversary awards

RDNZ discusses new attendance rules with officials

Inaugural Clinical Advisory Panel announced

Te Whatu Ora reset standing in the way of people with rare disorders getting the care they need

Our Collective