The latest updates from RDNZ and the rare disorder community. 

Apr 6, 2020, 6:01 PM
Resilience webinar for the rare disorder community

Please join us for a short live webinar with Tracey Hancock, a Life Coach who has herself navigated through health challenges and faced her own fears.

Apr 5, 2020, 1:42 PM
Ministry of Social Development update

Update from the Ministry of Social Development of support available during the COVID-19 crisis.

Mar 29, 2020, 4:57 PM
New website for carers

Our Carers Alliance partners, Carers NZ and IHC have launched a new website to make it easy to care for and about each other.

Mar 25, 2020, 4:41 PM
Open letter to the Prime Minister on behalf of the rare disorder community

Today we sent an open letter on behalf of the rare disorder community to Jacinda Ardern, as well as other appropriate Ministers.

Mar 18, 2020, 2:17 PM
Rare Disease Day campaign a success

A massive thank you to everyone who supported our organisation during our Rare Disease Day campaign last month.

Mar 5, 2020, 6:56 PM
NZ Voice of Rare Disorders White Paper

In November 2019 RDNZ conducted a survey to highlight the barriers within the current health system for people living with rare disorders.

Mar 2, 2020, 2:03 PM
Fair for Rare NZ campaign launched at Parliament

Last Friday Rare Disorders NZ launched a campaign calling for the development of a National Rare Disorder Framework.

Mar 2, 2020, 1:01 PM
Rare Disease Day media

Our CE, Lisa Foster, was interviewed four times for Rare Disease Day along with two mums of children living with a rare disease.

Mar 1, 2020, 1:59 PM
Cheers for Rare! Unique beer launched

The Rare Beer, a very special brew, was launched in Wellington last Wednesday.

Feb 17, 2020, 3:20 PM
'No choice but to keep going': Kiwi struggles to get help as his tissue turns to bone

Time is of the essence for a Nelson man with a rare genetic condition that causes his tissue to turn to bone.