The latest updates from RDNZ and the rare disorder community.
RDNZ commends the Government for ensuring there is a way for the rare disorder community’s concerns to be heard and needs to be met.
RDNZ hosted a short live webinar with Tracey Hancock, a Life Coach who has herself navigated through health challenges and faced her own fears.
Update from the Ministry of Social Development of support available during the COVID-19 crisis.
Our Carers Alliance partners, Carers NZ and IHC have launched a new website to make it easy to care for and about each other.
Today we sent an open letter on behalf of the rare disorder community to Jacinda Ardern, as well as other appropriate Ministers.
A massive thank you to everyone who supported our organisation during our Rare Disease Day campaign last month.
In November 2019 RDNZ conducted a survey to highlight the barriers within the current health system for people living with rare disorders.
Last Friday Rare Disorders NZ launched a campaign calling for the development of a National Rare Disorder Framework.
Our CE, Lisa Foster, was interviewed four times for Rare Disease Day along with two mums of children living with a rare disease.
The Rare Beer, a very special brew, was launched in Wellington last Wednesday.