Rare Beer Challenge 2026

20 Mar 2026 - 27 Mar 2025


The Rare Beer Challenge is an annual fundraising event for Rare Disorders NZ held in March during Rare Disorders Month. Craft breweries from around the motu compete for the title of Rare Beer Champi…

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Rare Regatta 2026

25 Mar 2026 - 25 Mar 2026


Gather your colleagues, family, clients or mates and sign up for an unforgettable afternoon on the water! Experience the thrill of racing aboard MRX yachts with your team, followed by drinks, prize …

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ASICS Runaway Hawke’s Bay Marathon 2026

16 May 2026 - 16 May 2026


Fundraise for Rare Disorders NZ while you take in the best highlights of the Hawke's Bay, with flat easy running through local cycle trails, quiet country roads and pass vineyards and orchards - all …

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Our Collective

Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 150 disorder-specific support groups.

Our work is informed by the issues important to our collective. We work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.

Learn more