2025 Barfoot & Thompson Auckland Marathon presented by ASICS

2 Nov 2025 - 2 Nov 2025


Support The Rare Disorders New Zealand Trust in the 2025 Barfoot & Thompson Auckland Marathon presented by ASICS Join in New Zealand’s biggest, most iconic, colourful, cultural running celebration a…

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The WAI Running Festival Wellington 2025

22 Nov 2025 - 22 Nov 2025


Support The Rare Disorders New Zealand Trust in The WAI Running Festival 2025 22nd November The WAI2K Run Fest for 2025 provides the perfect playground for trail runners to come and explore Greater …

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Lake Taupo Cycle Challenge 2025

29 Nov 2025 - 29 Nov 2025


Support The Rare Disorders New Zealand Trust in the Lake Taupo Cycle Challenge 2025 *Register to fundraise for Rare Disorders NZ here: https://laketaupocyclechallenge25.grassrootz.com/rdnz The Lake…

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ASICS Runaway Hawke’s Bay Marathon 2026

16 May 2026 - 16 May 2026


Fundraise for Rare Disorders NZ while you take in the best highlights of the Hawke's Bay, with flat easy running through local cycle trails, quiet country roads and pass vineyards and orchards - all …

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Our Collective

Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 150 disorder-specific support groups.

Our work is informed by the issues important to our collective. We work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.

Learn more