Events

Upcoming events for Rare Disorders NZ

Rare Beer Challenge 2025

7 Mar 2025 - 7 Mar 2025

We're excited for another epic Rare Beer Challenge during Rare Disorders Month in March 2025.  Craft breweries from around the region will be invited to come up with their version of a rare bee…

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Rare Beer Challenge 2025

Glow Up and Show Up South Canterbury

16 Mar 2025 - 16 Mar 2025

Join us for a catch up at the Shearers Quarters to celebrate rare disorders month and meet others in the rare disorders community. Children are welcome.

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Previous Events

Our Collective

Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 150 disorder-specific support groups.

Our work is informed by the issues important to our collective. We work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.

Learn more