Run for Rare

A great way to show support for people living with a rare disorder is by raising funds for Rare Disorders NZ while participating in community sporting events.

How? It's easy!

  1. Register in one of the upcoming sporting events below.
  2. Create a Grassrootz fundraising page.
  3. Share your page with your networks and get them to Show Up for you by donating to Rare Disorders NZ in support of your efforts.

Thank you for your support! 


Upcoming Events

12 July 2025 - The WUU2K - Wellington Urban Ultra Trail Marathon

2 November 2025 - Auckland Marathon

22 November 2025 - The WAI Running Festival, Greater Wellington 

29 November 2025 - The Lake Taupo Cycle Challenge


Need some inspiration?

Running with a rare disorder

Read Steve's story about running with a rare disorder

Steve's story

Running for a cause

Find out how Stephanie's niece inspired her to raise funds for Rare Disorders NZ

Stephanie's story


Shop #GlowUp sports shirts

We have Glow Up and Show Up sports t-shirts and caps available for purchase here

Share your efforts on social media!

#DoRightbyRare

and tag @RareDisordersNZ on Facebook or @RareDisorders_NZ on Instagram.

Funds raised can be directly transferred to our account:

Account name: The Rare Disorders New Zealand Trust
Account number: 01-0533-0042051-02

 

Rare News

Our Collective

Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 150 disorder-specific support groups. Our work is informed by the issues important to our collective, and we work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.

Learn more