Run for Rare

A great way to show support for people living with a rare disorder is by joining an organised community sporting event and raising funds for Rare Disorders NZ.

  • Purchase one of our branded sports tops and caps 
  • Glow Up with some brightly coloured accessories
  • Get your networks to Show Up and support your efforts by donating to Rare Disorders NZ!

Need some inspiration?

Running with a rare disorder

Read Steve's story about running with a rare disorder

Steve's story

Running for a cause

Find out how Stephanie's niece inspired her to raise funds for Rare Disorders NZ

Stephanie's story


Shop #GlowUp sports shirts

We have Glow Up and Show Up sports t-shirts and caps available for purchase here

Share your efforts on social media!

#DoRightbyRare

#RareDisordersMonth 

#GlowUpShowUp

and tag @RareDisordersNZ on Facebook or @RareDisorders_NZ on Instagram.

Funds raised can be directly transferred to our account:

Account name: The Rare Disorders New Zealand Trust
Account number: 01-0533-0042051-02

 

Rare News

Our Collective

Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 150 disorder-specific support groups. Our work is informed by the issues important to our collective, and we work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.

Learn more