Our Support Groups
Start typing the name of a condition or group to filter the list below.
This is a directory of the support group collective that works with Rare Disorders New Zealand. It is by no means an exhaustive list of support groups for the 7,000 plus rare disorders. If your support group would like to join our collective, please email enquiries@raredisorders.org.nz.
If you have searched the directory and cannot find a support group for your disorder, please contact us as we may be able to support you in other ways.
Start your own support group
If you would like to start your own support group, download our guide to setting up a support group here.