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Parkinson's, polio, focal dystonia, inherited ataxia and atypical Parkinson's (PSP & MSA)

More information can be found at https://www.cann.org.nz/

Our Collective

Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 150 disorder-specific support groups.

Our work is informed by the issues important to our collective. We work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.

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Rare News

Winning essay puts patient experience at the heart of future care

Paediatric palliative care funding in Budget 2026 positive news says Rare Disorders NZ

Another glowing Rare Disorders Month

Research event highlights value of community engagement

Aligning rare disorders research globally

Auckland welcomes Rare Beer Challenge with open arms

New genomics pilot project answers call for improved access to early and accurate diagnosis

Election year puts rare disorders care under spotlight as families wait for action

Our Collective