Rare forms of Cleft Lip; Palate; Van der Woude Syndrome; Pierre Robin Sequence; Stickler Syndrome
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More information can be found at http://www.cleft.org.nz
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Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 150 disorder-specific support groups.
Our work is informed by the issues important to our collective. We work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.
