Briefing on medicine access issues for rare sent to new Pharmac Chair

19 Jul 2024

Rare Disorders NZ wrote to Pharmac's new chair Paula Bennett to congratulate her on her new role, introduce our organisation and brief her about rare disorders and medicine access issues in New Zealand.

You can view our briefing document here. 

Our Collective

Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 150 disorder-specific support groups.

Our work is informed by the issues important to our collective. We work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.

Learn more