Rare Disorders NZ wants to ensure that all aspects of RDNZ’s work is informed by contemporary evidence-based best clinical practice and whakaaro Māori that considers and protects the best interests of those we engage with.

We are therefore seeking expressions of interest from New Zealand rare disorders clinicians (including nurses, allied health professionals, and general and specialist medical practitioners) who would like to be part of a clinical advisory panel to provide expert advice to RDNZ’s Board and staff.

Our Collective

Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 160 disorder-specific support groups.

Our work is informed by the issues important to our collective. We work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.

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