Rare Disorders NZ is extremely frustrated that the Government is scrapping all remaining COVID-19 restrictions while Pharmac is still in the process of deciding whether to widen the access criteria for COVID-19 antivirals.  

Currently the access criteria for COVID-19 antivirals exclude many groups of people who would be vulnerable to severe illness from COVID-19, including many in the rare disorder community. 

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“It is concerning to us that this decision could not have been postponed for a few more weeks to ensure the most vulnerable groups have access to the protection they need before they are put at increased risk of exposure,” says James McGoram, Chair of Rare Disorders NZ. 

“We wrote to the Minister of Health only yesterday after learning late last week that an easing of restrictions was likely towards the end of the month, to express our concern and ask for assurance that the Government would wait with any announcements until access to antivirals had been widened. The most vulnerable must always be at the forefront of these kinds of decisions.”  

Our Collective

Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 150 disorder-specific support groups.

Our work is informed by the issues important to our collective. We work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.

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