Disability Rights Commissioner meeting

1 Jul 2021

Our CE Lisa Foster recently met with Paula Tesoriero, the Disability Rights Commissioner, alongside support group leaders to represent the needs of the rare disorder community. 

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Thanks to Sue (22Q) Kelly (EDS) Denise (Foetal Anti-Convulsant Syndrome) and Jamie (NZ Amyloidosis Patient Association) for attending this meeting with Rare Disorders New Zealand to represent the rare disorders community.

Our Collective

Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 150 disorder-specific support groups.

Our work is informed by the issues important to our collective. We work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.

Learn more