Frank's story

I was diagnosed with Waldenstroms Macroglobulinemia in December 2012.  A blood test showed up some issues and more comprehensive tests led to the diagnosis.

Following a bone marrow biopsy, treatment was started with Chlorambucil. This did not agree with me at all and was discontinued, to be followed by seven cycles of Rituximab and Fludarabine.

Over the following few years the marker IGM level reduced steadily and now continuously runs within the "normal" range.

I have had no ongoing issues relating to the disease itself and I don't really think about it. But there have been some unrelated problems.  My immunity remains low and I am susceptible to infections having had two bouts of pneumonia, and two more serious infections, another one in the lungs and one in the brain. Otherwise I keep quite good health.