During Parliament's Scrutiny Week this week, Te Whatu Ora | Health NZ's leadership were asked by both Cameron Luxton MP and Dr. Ayesha Verrall MP about their position on the implementation of the Rare Disorders Strategy.

View the full exchange here:

Health NZ execs questioned about Rare Disorders Strategy implementation

Our Collective

Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 150 disorder-specific support groups.

Our work is informed by the issues important to our collective. We work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.

Learn more