We are pleased to announce that the membership of our inaugural Clinical Advisory Panel has been finalised with an impressive array of clinical expertise.

Clinical Genetics:  Stephen Robertson (co-chair)

Rheumatology:  Rebecca Grainger

Respiratory:  Andrew Veale

Haematology:  Ruth Spearing

General Practice:  John Martley

Audiology:  Lisa Seerup

Nursing:  Sharron Meadows

Metabolic:  Emma Glamuzina

Immunology:  Hilary Longhurst

International/Clinical Genetics:  Gareth Baynam

The Clinical Advisory Panel will be of enormous value for the Rare Disorders NZ team to draw on for information and advice and to help inform our decision making. Bios of each member will be on our website in the coming weeks.

Our Collective

Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 150 disorder-specific support groups.

Our work is informed by the issues important to our collective. We work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.

Learn more