Rare Disorders NZ has, along with 51 other organisations, signed an open letter organised by the Disabled Persons Assembly NZ calling on Ministers Upston and Willis to fully reverse the 18 March disability support restrictions and ensure disabled people have the resources and the flexibility needed to thrive.

Read the open letter here.

Our Collective

Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 150 disorder-specific support groups.

Our work is informed by the issues important to our collective. We work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.

Learn more