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There was wide consensus among submitters and presenters representing the disabled community that the bill needed to have standard-setting powers, powers of enforcement, investigative powers, and the ability to rectify breaches of accessibility. None of these calls have been implemented. 

Rare Disorders NZ will continue, alongside others in the disabled community, to advocate for improved accessibility for disabled New Zealanders in all areas of life. 

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Our Collective

Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 150 disorder-specific support groups.

Our work is informed by the issues important to our collective. We work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.

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