Rare Disorders NZ has written to Associate Education Minister David Seymour to seek clarity on the recently announced 'Stepped Attendance Response' (STAR) system and how it will apply to children with rare disorders.

Many children in our community already face significant barriers to learning and social participation, and we are concerned that a rigid application of the STAR system could place additional stress on families already managing complex health needs and the associated administrative load.

Read the letter here.

Update

We are pleased to have received clarity from Hon David Seymour in response to our letter regarding the Stepped Attendance Response (STAR) systems in every school.

Please see letter here.

Our Collective

Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 150 disorder-specific support groups.

Our work is informed by the issues important to our collective. We work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.

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