RDNZ Submission on Pae Ora (Healthy Futures) Bill
8 Dec 2021
Rare Disorders NZ has made a submission to the Pae Ora Legislative Committee on the Pae Ora (Healthy Futures) Bill.
RDNZ is deeply frustrated, albeit not surprised, that despite having engaged with the health system for over twenty years since our inception in 2000, and having specifically engaged with the Health Transition Unit prior to the introduction of the Pae Ora Bill, there is little in the legislation which will make a significant difference to the lives of people living with a rare disorder.
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