Hi there, I’m Sam. I’m 27 and I got diagnosed with Klinefelter Syndrome age 23, but those 23 years of not knowing were somewhat uncomfortable. I felt like I was very misunderstood as a child, into my teen years and early adulthood.
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Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 160 disorder-specific support groups.
Our work is informed by the issues important to our collective. We work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.
