Rare Disorders NZ has made a submission on the Therapeutic Products Act Repeal Bill.

Rare Disorders NZ (RDNZ) acknowledges the significance of the Therapeutic Products Act (the Act) in aiming to regulate therapeutic products comprehensively, balancing the associated risks and benefits. While we supported the Act's objectives, we had certain concerns with the Act as passed.

We are very interested in the promised “better regime” that Hon Casey Costello has signalled will be put in place, and we see the repeal as an opportunity to do better for the rare disorder community.

Read our full submission here.

Our Collective

Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 160 disorder-specific support groups.

Our work is informed by the issues important to our collective. We work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.

Learn more