Alanna has been volunteering for Rare Disorders NZ for many years, as well as being an active part of the 22q Foundation in Australia and New Zealand. She is a mum to four children, two of whom live with rare disorders, so she understands the challenges of caring for someone with a rare disorder and has excellent insight and personal experience of navigating the health system and other services. Alanna is also an active member of her community, volunteering and helping where needed.

Alanna Peck

Our Collective

Rare Disorders NZ is the collective voice of all people living with a rare disorder and their whānau. Our rare collective is made up of more than 150 disorder-specific support groups.

Our work is informed by the issues important to our collective. We work together to improve healthcare and wellbeing for everyone living with a rare health condition in New Zealand.

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